REnu warriors
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Samuel’s Story
Michaela shares her son Samuel’s diagnostic journey and how the ReNU community changed their lives.
Bow’s Story
Bow’s family share how they are spreading awareness and their hope for the future


Elodie’s Story
A family’s journey through uncertainty, diagnosis, and resilience, this story of Elodie and ReNU syndrome reveals the power of love, advocacy, and hope in the face of complex medical challenges.
Finley’s Story
Claire shares how for 19 years their family searched for answers for their son, and how they are now turning his courage, their journey, and finally having a diagnosis into hope and support for every ReNU family.





