Disclaimer
This page sets out the terms on which ReNU Syndrome UK provides information and support through this website, our social media, and our community activities. Please read it in full.
Who we are
ReNU Syndrome UK is a private company limited by guarantee (company number 17255929), currently applying for registration as a charity with the Charity Commission for England and Wales. Full registered details are available on our Governance page.
Not medical advice
The information provided on this website, and by our volunteers and community members, is for general awareness and support only. It is not a substitute for medical, clinical, legal, educational, or other professional advice.
ReNU Syndrome UK is not a medical service. We do not diagnose, treat, or prescribe. If you have concerns about your health, your child’s health, or the health of anyone you care for, please contact your GP, specialist, or NHS 111.
In an emergency, call 999.
Information accuracy
We take reasonable care to ensure that the information we share is accurate and up to date at the time of publication. However, understanding of ReNU Syndrome is still developing, and we cannot guarantee that all information on this website will remain current or complete.
If you spot something that appears out of date or inaccurate, please let us know and we’ll review it.
External links and third-party content
This website contains links to other websites, research papers, and third-party resources — including our sister organisation ReNU Syndrome United, Genomics England, Unique, SWAN UK, and others.
These links are provided for your convenience. ReNU Syndrome UK is not responsible for the content, accuracy, or availability of external websites, and inclusion of a link does not imply endorsement of the content or organisation.
Personal stories
Our ReNU Warriors stories, quotes, and other personal content on this website are shared with the permission of the families involved. Each family’s experience is their own, and does not reflect the experience of every person or family living with ReNU Syndrome.
Please do not share, reproduce, or distribute personal stories or images from this website without first contacting us. All personal content remains the property of the families involved.
Copyright and intellectual property
All original content on this website — including text, photographs, icons, and design elements — is the intellectual property of ReNU Syndrome UK or its contributors, and is protected by copyright.
You are welcome to share links to our pages and reference our content with appropriate attribution. If you would like to use any material from this website beyond that, please contact us first.
Data and privacy
ReNU Syndrome UK is committed to protecting your privacy. Details of how we collect, use, and protect personal data are set out in our Privacy Policy, available on our Governance page.
Changes to this disclaimer
We may update this disclaimer from time to time to reflect changes in our services, our activities, or applicable law. The most recent version will always be available on this page.
This disclaimer was last updated in July 2026.
Contact
If you have any questions about this disclaimer, or about anything on this website, please get in touch.